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Oncology 18.0

I have now had 18 CT scans over the past 4 1/2 years.

The latest doesn’t bring the greatest of news. The liver lesion that has been shrinking over the past few scans seems to have stopped its response. The latest scan showed that it had increased from 10mm to 16mm over the past three months. Prior to that it was as big as 24mm, but had reduced down to 10mm over 6 months of chemotherapy. There is also ongoing slow growth in the retroperitoneal lymph nodes of 2-3mm per node per scan.

What does this mean?? Well, mainly it means that I am only just satisfying the criteria for stable disease. So for now, chemotherapy is continuing, but the next scan in 3 months time will very much be a green or red light for further chemotherapy. If there is clearly demonstrated non-response, my current treatment will likely come to an end, and if it is still stable, then chemo will continue.

If my current regime does stop, then there isn’t really any publicly funded treatments remaining available to me as options. The only possible new option is Avastin, but that isn’t funded in NZ for bowel cancer as it doesn’t change outcome, rather just the length of time until the same outcome. I’m not particularly interested in pursuing it in the private sector as it costs a ridiculous amount of money, and as far as I’m concerned, if it doesn’t change outcome, then the money would be better spent on other, more efficacious things (like vaccinating kids in the developing world for example).

All in all, what this basically means is that my disease is progressing as we all knew it would. The unique thing about my disease is that it is operating on its own timetable and not one that is easily predicted. Whilst population data would predict a 1 in 5 chance of being alive this time next year, that same data had the same prediction for me over the past 3 years. Its fair to say I am bucking the trend, but what it does mean is the future is unpredictable. It might mean slow progression, or rapid deterioration, its impossible to know.

The next scan in three months will be a cliffhanger.

Until next time…

Categories: Blog, Cancer Update
  1. Theresa
    April 17, 2013 at 1:28 am

    Thanks Jared for sharing again, I have been thinking about you, as I had a few blood tests and investigations for tummy pain, and all is fine, but I thought of all those who start such tough journeys as yours with a blood test or investigation and have to rapidly cope and adapt and trust. You, you have marathon endurance..Been praying for you and Hannah; how you manage to keep going 3 months at a time, is beyond me, but thank God for your Faith which I know is a huge help. May you continue to work well and be Blessed with daily Grace and Peace. With thanks, Theresa

  2. Christy Rolfe
    April 17, 2013 at 8:27 am

    Thankyou for continuing to share your story with us, and for the work you do. We passed though Arrowtown on Saturday and affectionately remembered Claire and her productive although shortened life, and we sent you strong thoughts for courage and endurance and more, much more, time.

  3. Maree
    April 17, 2013 at 6:34 pm

    Hi Jared and Hannah, thank you for the update – our home-group are praying for you and
    will continue to do so. We will be praying for strength for you both as you continue this journey and will pray for a positive response for your next scan. Love and blessings to you both, Maree xx

  4. Dyana Parore-Connell
    April 19, 2013 at 3:17 pm

    Thanks for another of your updates. Your endurance is admirable and pleased your faith gives you and Hannah the strength to deal with your illness on a day to day basis. Take care.God bless.

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