I have now officially finished round 2 of chemotherapy. That makes 1/4 of the way through all 8 rounds. This particular round was land-marked by the incident of thrombosing internal jugular veins, and the surgery required to get my portacath removed. Apart from that, I would not say that this round has been any worse or any better than the 1st round. All the symptoms were more or less the same, the only difference being that they tended to kick in a little sooner and last a little longer, specifically the oxaliplatin induced neuropathy.
So now I get a week for my body to detox, before Thursday next week when it gets flooded with toxic chemicals again. I’d like to take the opportunity to thank all those who have helped recently with bringing over of meals etc. They have been really good particularly while I was in hospital, and also when I cant do much more than move from the couch, it means Hannah doesn’t have to cook all the time :-).
On the whole, I have to say that I’m not particularly looking forward to the next 6 rounds, but that is life, and I have to deal with it :-). Peace out.
So, I had the surgery last night, finally!!.. and this means no more nil by mouth dieting regime, which I am happy about. As of this stage, I’m yet to be discharged, but am currently at home because I manipulated the system to give me leave. I’ll be going back in to the hospital in an hour or so.
My portacath has been removed, and I still have a giant clot in my right internal jugular vein. The clot should hopefully slowly resolve over the next few weeks now that the source of it has been removed. This will be aided by the fact I have to inject myself twice a day for 2 weeks with clexane, also known as low-molecular-weight-heparin. After two weeks, the injections will continue once a day for about 3 or 4 months, or till the end of my chemo to help resolve the clot, and to prevent any further from occurring. The injection is just like an insulin injection, except way more stingy. The needle itself doesn’t hurt, its the stupid drug that causes local stinging for about 5 or 10 min after the injection.
So, at the moment, we are just waiting for the vascular team (again!!) to give me the all clear on the discharge. They weren’t projected to visit till sometime this afternoon, which is why we snuck home, so I could have a decent shower etc. In the mean time, I’m gonna be a complete cripple until this clot resolves. My neck is REALLY sore, so much so that I took morphine this morning to make it a bit more functional. I cant even get dressed without help, any sneezing, coughing turning of the head etc causes pain. Anything that may cause an increase of pressure on the carotid sheath, or the surrounding structures is bad news.
Also, apologies on the previous posts being out of order… it has something to do with the fact that I was posting them from my iPhone, it re-arranged them for some reason.
Quick update – I have now been dishcarged, so don’t have to go back into the hospital!! – Still a cripple though.
I have decided to resort to decimal update references since I’m currently spitting out more updates than anticipated. The latest news is that I’m in hospital for the night and that surgery has been delayed till tomorrow morning. I’m still on the acutes list, which is actually annoying, cos it means I can get bumped at any time by something more serious, as was the case this evening. Apparently some neuro surgery was more important. 🙂
Anyway, I’m in a room with an 82yr old male with angina to my right who calls me by a different name each time he talks to me, another old guy with pneumonia, and a lady who sounds like a man when she talks. I’m assured she is a female, but haven’t yet been able to verify this. Audibly she is definitely man sounding.
So I’m gonna rip out my earplugs so I don’t get kept up by wheezing all night. Hopefully surgery will to ahead as planned, an I can get home tomorrow.
Please enjoy the view of the end of my bed as much as I will :-).
I have starts writing this post in hospital while waiting for an ultrasound scan of my neck. Yesterday morning I awoke with a sore neck which I put down to the way I slept, however, over time it got worse. By last night, there was also swelling which I chose to ignore and went to sleep. This morning when I awoke, it had neither improved or got worse, but it had become apparent that it needed attention. The swelling is located right at the point where my portacath inserts into the sublcavian.
So, long story short, I’m awaiting an ultrasound to work out whether or not my portacath has clotted up or not. Let’s hope it hasn’t.
So it turns out I have thrombosed of my internal jugular vein. The consequences of which are that my portacath will have to be removed. So I am currently being admitted and then being put on a surgical list for the removal.
I’m not looking forward to infusions of oxaliplatin thru the arm veins!!!
I’ll try to keep this updated as things happen.